Rare Diseases Day 2024

Concert

The Band “Stories”


Thursday, February 29, 2024 (19:15 - 20:30) 
LAU Beirut Campus, Gulbenkian Amphitheater 


Dear All,

Rare diseases affect more than 300 million people around the world. Today, there are more than 7,000 known rare diseases, 72% of which are of a genetic origin. In most cases, the patient’s quality of life is affected by a lack of autonomy due to the chronic, progressive, degenerative, and frequently life-threatening aspects of the disease.

In Lebanon, more than 250,000 people are affected by a rare disease. To increase awareness about these rare/orphan diseases, the Department of Human Genetics at the Lebanese American University’s Gilbert and Rose-Marie Chagoury School of Medicine has organized a series of activities under the title “RARE DISEASE DAY ACTION 2024”.

Rare Disease Day (RDD) is a globally coordinated movement that seeks to promote equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. The RDD is observed every year on February 28 (or 29 in leap years).

The first activity at LAU will be a concert by STORIES/Bridging Traditions, a band founded in 2018. Ziad El Ahmadie (oud and composition), Bahaa Daou (percussion) and Chadi El Ahmadieh (electric piano) will enchant you with a fusion of Oriental and European music, an expression of how music can bridge cultures, spaces, and audiences.

You are all welcome to join us starting at 6:30 p.m. and kindly register to secure your place. Seating will be allocated on a first-come, first-served basis, with no specific seat assignments.

Bahaa Daou 

 

Ziad El Ahmadie

 

Chadi El Ahmadieh 

 


 

Click here to register for free 

(Online registration will close at 12 PM on February 28th, but on-site registration will still be an option if places are available)